MY STORY
Or
2. No operation and continued seizures until they paralyzed me anyway.
It boiled down to: When do you want your wheelchair?
After ten years of fishing boats and the bitter cold of the North Slope,
I moved to the desert of New Mexico where I became a Christian and started
a new life with God. Five years later, a neurologist at MINCEP(Minnesota
Comprehensive Epilepsy Program) correctly diagnosed my seizure disorder
as RASMUSSEN'S ENCEPHALITIS. He told me that a hemispherectomy
could stop the continual seizing. So, I started reading
and studying about it. I put together a
notebook of questions for the neurologist and neurosurgeon to help
me make the decision:
1. Let them take out half of my brain and be paralyzed for
life in exchange for no seizures.
Something had to be done. I was in the hospital weekly for Status
Epilepticus. I had finally convinced the neurologist that I was capable
of making the decision. We set a date for surgery later that year.
Meantime, I had a complete psychological profile and psychometric testing
done so I would know what changes, if any , were caused. God had
been with me from Day One of the encephalitis. Testing showed that all
mental functions of the
diseased right hemisphere (except vision and motor) had already transferred
to the left hemisphere. So, I could have a hemispherectomy and not
lose any mental abilities,but I would be paralyzed on the opposite
side of my body. The surgery was successful. I no longer have
seizures and after a repeated psychological test no changes were found.
I lost no memories, my speech was not affected. I am the same person.
I just cannot move my left arm and leg. I have been living alone
in my own apartment for three years now. I have learned that I can
do everything I need to do with one hand instead of two. My hope
is to share my one-handed techniques with anyone who would be helped.
Most important of all I want to show the world that God is real and He
does answer prayer. If I can use my experience to help
you or anyone recovering from a stroke or accident that has left you with
only one working hand, please email me. You are not alone
and you are still useful to God. I would be happy to pray for you
.